Help for self-help
The NETWORK for pituitary diseases and adrenalopathy is a nonprofit association of affected persons, relatives and doctors.
The NETWORK was founded in 1994 by patients and endocrinologists (specialists in hormonal disorders and metabolic diseases) in Erlangen.
The NETWORK is the first organisation in partnership of patients and doctors
for pituitary diseases and adrenalopathy in Germany.
It often happens that diseases of the pituitary gland or adrenal gland are diagnosed
and treated too late because of the initially uncharacteristic symptoms and
the slow progress of the disease. In many cases a lifelong hormone therapy is
required and affected persons often feel being left alone with special questions.
The network deals with the following diseases: Cushing's syndrome, prolactinoma,
acromegaly, hormone-inactive pituitary gland adenoma, diabetes insipidus, Addison's
disease as well as panhypopituitarism with lack of cortisol, thyroid hormones
and growth hormones.
The new thing is that there are groups for Multiple Endocrine Neoplasia Type 1 and endocrine tumors (network NET).
Apart from the promotion of the communication between affected persons the NETWORK has set itself the following goals:
In order to realize our goals we finance our activities from annual contributions
of members and voluntary donations. The NETWORK has its seat in Erlangen/Germany:
Netzwerk Hypophysen- und Nebennierenerkrankungen e. V.
Waldstraße 34
D - 91054 Erlangen
Tel. +49 9131 815046
Fax +49 9131 815047
Email:
Homepage: http://www.glandula-online.de
If you have any further questions feel free to contact us by email.